(PA-146) Abstract: The Role of Caregivers in Multiple Myeloma Care: A Social Work Perspective at the Ampath Multiple Myeloma Program (AMMP)

: Multiple myeloma (MM) is a chronic, complex cancer requiring long-term management, significantly affecting both patients and their caregivers. At the AMPATH (Academic Model Providing Access to Healthcare) Multiple Myeloma Program, caregivers support patients throughout their treatment journey, often facing emotional, physical, and financial burdens. Social workers play a key role in equipping caregivers to cope effectively while preserving their well-being.

This paper explores the role of caregivers in MM care at AMMP and highlights the interventions of a social worker in addressing caregiver challenges. Focus areas include emotional support, financial navigation, and access to care resources.

Methods:   Based on the experience of a social worker at AMPATH, this report reflects support provided to caregivers through one annual group session and monthly individual counseling (totaling 12–15 hours/year). Approximately 70 caregivers attend the group session. Data is gathered via informal feedback and self-reports on caregiver stress and satisfaction. The social worker also refers caregivers to financial aid and community resources

Results:   

Support group sessions reach 65–70 caregivers, with 70% reporting reduced stress and improved coping. Over the past year, at least 15 caregivers received financial referrals. Counseling led to a 60% improvement in stress management and increased caregiver empowerment. Participants also reported greater satisfaction and lower burnout levels.

Conclusions:   Caregivers are central to the success of MM treatment. Social work interventions—though limited in scope—are vital in supporting caregivers emotionally and practically. The integration of caregiver-focused support within AMPATH enhances the overall treatment experience, promotes caregiver resilience, and contributes to better outcomes for both patients and families.